stories
Most of our stories are from children or young people living with Crohn's disease or Ulcerative collitis, or those who were diagnosed as a child, or their families. We are really grateful to them all for sharing their experience to help others feel less alone and hopeful for the future.
Telling your story can be really helpful for others, and give useful insights to everyone about what living with inflammatory bowel diseases (IBD) like Crohn's and colitis is really like for children and young people, and their families.
Matt's inspiring story
Matthew Eames has had crohns since he was eight years old. Read his inspiring story.
Isabelle
Gail writes about how her daughter Isabelle's struggles with Crohn's disease inspired her to write a beautifully illustrated book for children with invisible illnesses
Jen and Max
Jen has lived with ulcerative colitis since the age of 10. Her son, Max, was diagnosed 2.5 years ago with Crohn’s disease aged 10.
William
William spoke at one of our family days about living with Crohn's disease and the treatments he has had.
Eliza
Jayne's daughter Eliza was diagnosed with Ulcerative colitis aged 13. After surgery when she was 15, Eliza asked her doctors if she would be able to have children and was told 'probably not' because of extensive scarring.