UK organisations
Crohn's and Colitis UK
UK charity supporting people who have IBD, their families and friends, and health professionals.
Telephone: 0300 222 5700
Email: helpline@crohnsandcolitis.org.uk
Address: 1 Bishops Square, Hatfield Business Park, Hatfield, AL10 9NE
IBDUK
Partnership of organisations working together for everyone affected by Inflammatory Bowel Disease. Alliance with an important goal: To ensure that people with IBD receive consistently high quality, person-centred care wherever they live in the UK and have the best possible outcomes from their treatment and care.
IBD Passport
Award winning website that aims to provide comprehensive, practical and reliable information on all aspects of travelling with IBD. IBD Passport is the first website to combine this information into one resource to make planning your trip easy. IBD Passport is a UK registered non-profit charity (Registered number: 1171268) with a global reach aimed to support IBD travellers of all nations and regions in the world.
Coeliac UK
The organisation for people of all ages with coeliac disease
PINNT
The organisation for patients with intravenous and nasogastric nutrition therapy
NICE
The National Institute for Health and Care Excellence (NICE) is an independent organisation responsible for providing national guidance on promoting good health and preventing and treating ill health. NICE has a range of relevant clinical guidelines, quality standards and technology appraisals.
Contact
Support families with guidance and information and bring families together to support each other
IPSEA
Legal based advice to families who have children with special educational needs
IA
The Ileostomy and Internal Pouch Support Group including Young IA for children and young people
Child Law Advice Centre
Operated by Coram Children’s Legal Centre, they provide specialist advice and information on child, family and education law to parents, carers and young people in England.
ERIC
Education and Resources for improving Child Continence
Anna Freud National Centre for Children and Families
Children’s mental health charity with over 60 years’ experience of caring for young minds. Their vision is a world in which children and their families are effectively supported to build on their own strengths to achieve their goals in life.
international organisations
EFCCA
European Federation of Crohn's and Ulcerative Colitis Associations. A Europe-wide umbrella organisation of 26 national associations for patients with Crohn's and colitis. A number of country specific downloadable travelling factsheets are available from the site.
CCFA
Crohns and Colitis Foundation of America
CCA
Crohns and Colitis Australia
CCFC
Crohns and Colitis Foundaiton of Canada